ALS Ice Bucket Challenge Progress
Since its founding in 1988, the ALS Association of Georgia has worked with ALS patients and their families to ensure the highest quality of life possible.The progression of ALS varies significantly from one patient to another. No matter a patient’s situation, the ALS Association of Georgia is available to provide vital services and reliable information.
Need information or assistance? Call us at (404) 636-9909 or toll free (888) 636-9940
The ALS Association of Georgia programs and services include:
*ALS101: Navigating the Journey is a 1-to-1 or small group meeting designed to educate you or a loved one after a confirmed diagnosis of ALS. Navigating this disease can be overwhelming and this is an opportunity to be armed with information to make informed decisions at each stage throughout the journey. ALS101 is offered throughout the month at various times and places. If you are interested in participating, please contact a member of our Care Services team. Currently, all meetings are being scheduled via phone or an online video platform.
*Support Groups for patients, family members, caregivers and friends
*Kostiuk ALS Care Grant Program This program is a reimbursement program that assists families with expenses that are not traditionally covered by private insurances, Medicaid or Medicare.
Grant Cycle #2 will open on July 1, 2022:
*Paul B. Williams ALS Transportation Program to address the need of accessible van rentals, non-emergency transportation, van adaptations, and van vouchers. Click here to apply. To learn more about the ALS Transportation Program, click here.
*In-Home Care & Respite relief through the Sally Panfel ALS In-Home Care and Respite program. Click here to learn more about the program. Click here to apply.
*Information is vital to persons with ALS. As the body declines it is very important to be presented with realistic expectations regarding the disease trajectory. Skilled Care Service Coordinators are available to provide ongoing consultations through our Care Services Consultation Program. The ongoing consultations provide the opportunity to assess, educate and empower individuals and their families to make informed decisions. The coordinators are also very instrumental in identifying and making community referrals. The ALS Association is the connection between what is needed and what is available for persons with ALS, their families and caregivers.
*We provide support to ALS Clinics staffed by neurologists, speech and respiratory therapists, social workers and dietitians
*The Ricky P. Sweat ALS Equipment Loaner & Assistive Technology Program offers the opportunity to address mobility and communication needs when devices that may not be accessible through Medicare, Medicaid or private insurances based on individual needs and circumstances. For more information on this program you can contact Care Services at careservices@alsaga.org
*A Reading Reference list of books for our patients and their families.
*An Emergency Preparedness Guide to help families with ALS prepare for emergency situations.
*Annual Educational Symposiums / Lunch and Learns designed to educate on current medical and psychosocial clinical care standards in ALS (2022 Resource Guide)
*To learn more about ALS Research in Georgia, visit Emory ALS Center's Clinical Research page and Augusta University's Neurology Research page.
Upcoming Events:
2022 Georgia's ALS Symposium
Caregiving & Living with ALS - Finding the Balance
Keynote Speaker: Elizabeth B. Miller, Founder Happy Healthy Caregiver
The diagnosis of ALS is a new stage in you and your family’s life. Important decisions and discussions about caregiving, along with uncertainty and concern may arise. Caregiving may evolve to include assistance with daily activities, making legal and financial planning decisions, and keeping up with community activities. This day will give both individuals with ALS and caregivers some practical “how-to’s” and address how you can find the balance in caring for your loved one. Join us as we connect with each other in the ALS community!
