Our story
Thank you in advance for helping me reach my Walk to Defeat ALS fundraising goal. This year the ALS Georgia Chapter fundraising event will be held on 9/25/21 to spread awareness of the urgency to find treatments and a cure. I need you on my team!
I was diagnosed with brachial diplegic variant Amyotrophic Lateral Sclerosis (ALS) on 8/14/18 after slowly progressing for several years. I am now a quadriplegic and cannot walk, write, nor move my arms or fingers to feed myself. I continue to keep my chin held high while looking for ways to use technology to stay engaged with my friends and loved ones. I use Sesame Enable app on my Android smartphone and tablet to control use with my head movements along with Google Voice to email, text, search the web, read, make a phone call etc.
ALS is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. I don't focus on what will be, I try to stay positive, healthy and live through this journey in the moment with hope. I have found purpose as an ALS Advocate to help others.
I am excited about the future post pandemic to be reunited with family, friends and team members. I am grateful for my loyal and compassionate care team. The love from my family and friends that surrounde me gives me strength.
ALS can strike anyone, and presently there is no known cause or cure. That's why I'm asking you to participate ng to bring help and hope to those living with the disease. To ensure that no one ever hears the words: You Have ALS again.
The past several years have brought advancements in ALS research, expanded access to care for people living with ALS, and enabled legislation that impacts the quality of life of people with ALS and their families. As an ALS Advocate, I was honored in June 2020 to participate virtually in the National Advocacy Conference to help further advance public policy with our legislators. A highlight of 2020 was the passing of legislation for ending the Social Security Disability Insurance 5-month waiting period for people living with ALS.
I am so thankful for my donors and
amazing team members for their
fundraising efforts. Over the last two years Pam's Parade has raised over $83,000 towards making a difference for our local chapter's services and towards research and a cure. The key to a cure begins with you and we can't stop now.
Engage family and friends to consider a donation towards the cause by sponsoring Pam's Parade. With your help, we will be able to make a difference in the lives of people affected by this awful disease.
With appreciation,
Pam
ABOUT ALS
Amyotrophiclateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. Thelife expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis.
ALS can strike anyone. Presently there is no known cause of the disease, yet it still costs loved ones an average of $250,000 a year to provide the care people living with ALS and their families need. Join the movement to provide help and hope today!